Books focusing on a disability experience

Summer is prime time for reading, but you don’t have to slip the latest John Grisham or a bodice ripper into your beach bag.

There are a lot of great reads – fiction and nonfiction – about people with chronic or age-related disabilities.

Books help readers gain a sense of themselves and others. Understanding people with different challenges enriches a reader’s life.

I recently met book-lover Hanagarne in the pages of his memoir, The World’s Strongest Librarian.

Josh defies the stereotype of the sternly quiet, bejeweled spectacled, bunhead of a librarian.

He’s a hulking 6-foot-7 and so strong from power kettlebell lifting that he can easily rip the thick Salt Lake City phone book in half.

What makes Josh an improbable librarian is that he himself is “un-shushable.”

Josh has Tourette’s Syndrome, a rare neurological disorder characterized by involuntary physical and vocal tics. My only previous knowledge of Tourette’s came from the TV show “L.A. Law” in which a character with the disorder could not reign in his urge to swear and utter racial slurs.

Tourette’s seemed too bizarre to be true until I read The World’s Strongest Librarian and learned how Josh experiences it.

He’s a good sport about it. (What choice does he have?) He writes about his hooting baby owl sound. The slobbering dog sound. The finishing a round of wind sprints sound. His wind-rustling-through-a ghost town sound. The frog in his throat that triggered persistent throat clearing.

Then comes the sobering realization that Josh’s headfirst dive into strength training is a valiant attempt to master his involuntary tics.

What’s lifting a few hundred pounds to one who has been carrying much heavier impediments since childhood?

With humor and candor, Josh finds ways to break the shackles of other weighty issues: loneliness, geekiness, infertility, an inner spirituality at odds with the theology of the denomination in which everyone he loves remains blissfully affiliated.

This is a warts-and-all story told a guy who defies stereotypes – a power-lifting librarian whose literary crush is Fern, the farm girl who saved Wilbur in Charlotte’s Web.

There are many other good books that provide a window into the experience of living with a disability.

Here are a few novel suggestions that will deepen your understanding of aging or disability.

Comment to add your favorites.

  • Havana Heat by David Brock
  • The Speed of Dark by Elizabeth Moon.
  • Flowers for Algernon by Daniel Keyes.
  • Where the River Turns to Sky by Gregg Kleiner.
  • Icy Sparks by Gwen Rubio
  • Lottery by Patricia Wood.